In 2023, my wife and I welcomed our little boy, Dexter, into the world.

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Three weeks later, we received a call from the hospital. The standard newborn screening, known as the heel prick test had flagged something.

 

Dexter had tested positive for Cystic Fibrosis!

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Cystic Fibrosis is a genetic condition that affects the lungs and digestive system. It makes it hard for the body to move salt and water in and out of cells, which leads to a build-up of thick, sticky mucus.

 

For people like Dexter, this means a daily routine of medication, physiotherapy, and constant vigilance, just to stay on top of his health.

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But in 2025, at just 2 years old, Dexter started a new treatment: Kaftrio. It’s been called a breakthrough, a game-changer. And it really is. For many, it drastically improves lung function, weight gain, and overall quality of life. It's not a cure, but it gives us hope. Real, tangible hope.

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Every day, we’re learning. About resilience, perspective, and what matters.

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So now, each year, I’ve committed to using my time, energy, and platform to raise awareness and funds for Cystic Fibrosis.

 

Whether it’s a fundraising event, a challenge, or a quiet campaign, it will always be for something bigger than me.

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If you’d like to support, you can donate via the link below, or follow along for updates on future events.​

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Together, we get closer to a cure.